Charity: Children's Heart Federation

The Children’s Heart Federation (CHF) is the leading UK children’s heart charity and works with individuals and organisations concerned with children and young people with health and educational needs due to acquired or congenital heart conditions. What we do • Share information via two series of information sheets, heart conditions and caring for heart children. • Information phone line for support and advice. • Provide INR machines (to check coagulation levels in children on blood thinners) where they are not available from the NHS trust, subject to available funds. • Produce scarred Molly’s Dollies for children undergoing surgery or having treatment for a heart condition. • Produce Rosie goes red, Violet goes blue a booklet that explains about a heart condition to young children. • Advise policy makers and service providers on how the needs of children with heart conditions should be met. • Share a round up of congenital heart disease news via their e-journal: Heart2Heart that focuses on key UK and international stories. • Support research projects across the globe to help make the future a brighter place for children with heart conditions. • Campaign for improvements in health, social and educational provision for young CHD patients. • Promote better awareness and support for heart children and families via their social media platforms on Facebook and Twitter. CHF was registered with the Charity Commission in 1988 and is administered and managed by a board of trustees.